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Journal of Family Nursing
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1074840709332929v1
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Article

Becoming the Advocate of a Parent With Dementia Admitted to a Long-Term Care Facility: An Explanation of the Process Experienced by Daughters

Alain Legault* and Francine Ducharme

* To whom correspondence should be addressed. E-mail: alain.legault{at}umontreal.ca.


  Abstract
Daughter caregivers of elders with dementia become their parents’ advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalization. In-depth interviews were conducted with daughters (N = 14) of an institutionalized parent with dementia and selected using a theoretical sampling procedure. Data analysis using grounded theory revealed three interrelated processes that explain role transformation of the daughters: integration in the care setting, evaluation of quality of care, and development of trust. Implications for involving daughters as care partners in long-term care settings are offered.

First published on March 23, 2009, doi:10.1177/1074840709332929

Journal of Family Nursing 2009;15:198.

A more recent version of this article appeared on May 1, 2009

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