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Research-as-if-PracticeA Study of Family Nursing Partnership With Couples Experiencing Severe Breathing Difficulties
Helga Jonsdottir, RN, PhD
University of Iceland, Reykjavik, helgaj{at}hi.is
Living with the symptoms of lung disease is challenging. The impact difficult breathing has on individuals and their families is frequently underestimated, with health care limited to managing physical manifestations of the origins of difficult breathing. This study describes a distinct approach to family nursing practice named partnership, which is based on a participatory worldview. Five couples in which the wife had severe breathing difficulties participated in the study. The research process is described as as-if-practice. The partnership process was illustrated in the theme "finding coherence in life with symptoms and treatment regimens." The outcome of the process was illustrated in the interrelated themes of "living life fully and taking things as they come" and "efficient use of health care." The study shows how the meaning that unfolded in the process reveals the insights of all participants into the families' health predicaments and what can be done with that insight.
Key Words: families family nursing couples lung disease COPD participatory paradigm practice research partnership research-as-if-practice Icelandic families
References
- Barstow, R.E. (1974). Coping with emphysema. Nursing Clinics of North America, 9(1), 137-145.[Medline]
[Order article via Infotrieve]
- Benner, P. (1994). The tradition and skill of interpretive phenomenology in studying health, illness, and caring practices. In P. Benner (Ed.), Interpretive phenomenology. Embodiment, caring and ethics in health and illness (pp. 99-127). Thousand Oaks, CA: Sage.
- Bergs, D. (2002). `The hidden client'- Women caring for husbands with COPD: Their experience of quality of life. Journal of Clinical Nursing, 11, 613-621.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Cain, C.J., & Wicks, M.N. (2000). Caregiver attributes as correlates of burden in family care-givers coping with chronic obstructive pulmonary disease. Journal of Family Nursing, 6(1), 46-68.
- Callahan, M. (1982). COPD makes a bad first impression, but you'll find wonderful people underneath. Nursing, 82, 68-72.
- Cannon, C.A., & Cavanaugh, J.C. (1998). Chronic illness in the context of marriage: A systems perspective of stress and coping in chronic obstructive pulmonary disease. Families, Systems, & Health 16(4), 401-418.
- Chesla, C.A. (2005). Nursing science and chronic illness: Articulating suffering and possibility in family life. Journal of Family Nursing, 11(4), 371-387.
- Cossette, S., & Lévesque, L. (1993). Caregiving tasks as predictors of mental health of wife care-givers of men with chronic obstructive pulmonary disease. Research in Nursing & Health, 16, 251-263.[Medline]
[Order article via Infotrieve]
- Diethorn, M. (1985). Prevention of sensory deprivation for the COPD victim's spouse. Topics in Clinical Nursing, 6(4), 64-71.[Medline]
[Order article via Infotrieve]
- Dudley, D.L., Wermuth, C., & Hague, W. (1973). Psychosocial aspects of care in the chronic obstructive pulmonary disease patient. Heart and Lung, 2(3), 389-393.
- Gunnarsdottir, A., Haraldsdottir, I., Hrafnkelsdottir, S., Ingadottir, Th. S., & Jonsdottir, H. (2000). Reynsla eiginmanna kenna með langvinnan teppusjúkdóm í lungum [The experience of husbands of wives with a chronic obstructive lung disease] Unpublished bachelor's degree thesis, Department of Nursing, University of Iceland, Reykjavik, Iceland.
- Heron, J., & Reason, P. (1997). A participatory inquiry paradigm. Qualitative Inquiry, 3(3), 274-294.[Abstract/Free Full Text]
- Hrafnkelsdottir, S., Gunnarsdottir, A., Haraldsdottir, I., Ingadottir, Th. S., & Jonsdottir, H. (2003). The experience of husbands of wives with advanced stage of chronic obstructive pulmonary disease. A presentation at the 41st Nordic Lung Congress and 4th Nordic Pulmonary Nurses Congress, Reykjavik, June 4-7, 2003. Lungeforum, Scandinavian Respiratory Journal, Suppl. 22(13), 60.
- Jonsdottir, H. (1998). Life patterns of people with chronic obstructive pulmonary disease: Isolation and being closed in. Nursing Science Quarterly, 11(4), 160-166.
- Jonsdottir, H., Litchfield, M., & Pharris, M.D. (2003). Partnership as practice. Research and Theory for Nursing Practice, 17(1), 51-63.
- Jonsdottir, H., Litchfield, M., & Pharris, M.D. (2004). The relational core of nursing: Practice as it unfolds. Journal of Advanced Nursing, 47(3), 241-250.[CrossRef][Web of Science][Medline]
[Order article via Infotrieve]
- Kara, M., & Mirici, A. (2004). Loneliness, depression and social support of Turkish patients with chronic obstructive pulmonary disease and their spouses. Journal of Nursing Scholarship, 36(4), 331-336.[CrossRef][Medline]
[Order article via Infotrieve]
- Keele-Card, G., Foxall, G.J., & Barron, C.R. (1993). Loneliness, depression and social support of patients with COPD and their spouses. Public Health Nursing, 10(4), 245-251.[Web of Science][Medline]
[Order article via Infotrieve]
- Kuyper, M.B., & Wester, F. (1998). In the shadow: The impact of chronic illness on the patient's partner. Qualitative Health Research, 8(2), 237-253.[Abstract/Free Full Text]
- Litchfield, M. (1999). Practice wisdom. Advances in Nursing Science, 22(2), 62-73.
- Litchfield, M. (2005). Nursing praxis of family health. In C. Picard & J. Jones (Eds.), Giving voice to what we know. Margaret Newman's theory of health as expanding consciousness in nursing practice, research, and education (pp. 73-82). Boston: Jones and Bartlett.
- Morgan, G. (1983). In research, as in conversations, we meet ourselves. In G. Morgan (Ed.), Beyond method. Strategies for social research (p. 405-407). Beverly Hills, CA: Sage.
- O'Neill, E.S. (2002). Illness representations and coping of women with chronic obstructive pulmonary disease. Heart & Lung, 31(4), 295-302.[CrossRef][Medline]
[Order article via Infotrieve]
- Newman, M. (1990). Newman's theory of health as praxis. Nursing Science Quarterly, 3(1), 37-41.[Abstract]
- Newman, M. (1991). Dialogue on a research issue: The research-practice relationship. Nursing Science Quarterly, 4(3), 100-101.
- Newman, M.A. (1994a). Health as expanding consciousness (2nd ed.). New York: National League for Nursing.
- Newman, M.A. (1994b). Theory for nursing practice. Nursing Science Quarterly, 7(4), 153-157.
- Newman, M.A. (1997). Evolution of the theory of health as expanding consciousness. Nursing Science Quarterly, 10(1), 22-25.
- Newman. M. A., Sime, A.M., & Corcoran-Perry, S.A. (1991). The focus of the discipline of nursing. Advances in Nursing Science, 14(1), 1-6.[Medline]
[Order article via Infotrieve]
- Oberle, K., & Allen, M. (2001). The nature of advanced practice nursing. Nursing Outlook, 49(3), 148-153.[CrossRef]
- Pharris, M.D. (2002). Coming to know ourselves as community through a nursing partnership with adolescents convicted of murder. Advances in Nursing Science, 24(3), 21-42.
- Pharris, M.D. (2005). Engaging with communities in a pattern recognition process. In C. Picard & J. Jones (Eds.), Giving voice to what we know. Margaret Newman's theory of health as expanding consciousness in nursing practice, research, and education (pp. 83-94). Boston: Jones and Bartlett.
- Sexton, D.L., & Munro, B.H. (1985). Impact of a husband's chronic illness (COPD) on the spouse's life. Research in Nursing & Health, 8, 83-90.
- Sexton, D., & Munro, B.H. (1988). Living with a chronic illness. The experience of women with chronic obstructive pulmonary disease (COPD). Western Journal of Nursing Research, 10(1), 26-44.[Free Full Text]
- Skolimowski, H. (1994). The participatory mind. A new theory of knowledge of the universe. London: Arkana.
- Thorne, S.E. (1993). Negotiating health care. The social context of chronic illness. Thousand Oaks, CA: Sage.
- Wicks, M.N. (1997). A test of the Wicks Family Health Model in families coping with chronic obstructive pulmonary disease. Journal of Family Nursing, 3(2), 198-212.
- Wright, L.M., & Leahey, M. (2005). Nurses and families. A guide to family assessment and intervention (4th ed.). Philadelphia: F.A. Davis.
- Xiaolian, J., Cahiwan, S., Panuthai, S., Yijuan, C., Lei, Y., & Jiping, L. (2002). Family support and self-care behavior of Chinese chronic obstructive pulmonary disease patients. Nursing and Health Sciences, 4, 41-49.[CrossRef]
Journal of Family Nursing, Vol. 13, No. 4,
443-460 (2007)
DOI: 10.1177/1074840707309210

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