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Journal of Family Nursing
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Team Research Using Qualitative Methods: Investigating Children’s Involvement in Clinical Research

Joanne M. Hall, Ph.D., R.N., F.A.A.N.

University of Tennessee-Knoxville

Patricia E. Stevens, Ph.D., R.N., F.A.A.N.

University of Wisconsin-Milwaukee, stevens{at}uwm.edu

Pamela K. Pletsch, Ph.D., R.N.

University of Wisconsin-Milwaukee

With changes in U.S. federal guidelines mandating inclusion of children in clinical research, more and more children are being sought as subjects in clinical trials. As research participants, children are more vulnerable than adults because of cognitive and emotional development, legal capacity, level of autonomy, and dependence on family influence. The purpose of this article is to describe the methods and process of a family-focused qualitative study of the clinical research experiences of ill children and their mothers, fathers, and siblings. This research, undertaken by a team of investigators, was designed to result in understanding family members’ perspectives on research involving children and recommendations for optimal ways to obtain informed consent and conduct clinical research on children.

Journal of Family Nursing, Vol. 7, No. 1, 7-31 (2001)
DOI: 10.1177/107484070100700102
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This article has been cited by other articles:


Home page
 Journal of Family NursingHome page
R. M. S. Nelson and C. H. Rushton
Commentary on Special Issue on Informed Consent With Families of Ill Children (February 2001): Understanding Devastation and Difference in Informed Permission and Assent
Journal of Family Nursing, May 1, 2001; 7(2): 208 - 213.
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 Journal of Family NursingHome page
P. K. Pletsch and P. E. Stevens
Children in Research: Informed Consent and Critical Factors Affecting Mothers
Journal of Family Nursing, February 1, 2001; 7(1): 50 - 70.
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 Journal of Family NursingHome page
J. Liaschenko and S. M. Underwood
Children in Research: Fathers in Cancer Research--Meanings and Reasons for Participation
Journal of Family Nursing, February 1, 2001; 7(1): 71 - 91.
[Abstract] [PDF]

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 Journal of Family NursingHome page
J. A. Snethen and M. E. Broome
Children in Research: The Experiences of Siblings in Research Is a Family Affair
Journal of Family Nursing, February 1, 2001; 7(1): 92 - 110.
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