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Journal of Family Nursing, Vol. 12, No. 4, 390-412 (2006)
DOI: 10.1177/1074840706294510

Family Structure and Mothers’ Caregiving of Children With Cystic Fibrosis

Debra Gayer, PhD, RN, CPNP

University of Missouri-Columbia

Lawrence Ganong, PhD

University of Missouri-Columbia

The purpose of this investigation is to examine differences in the experiences of mothers of children with cystic fibrosis who are in diverse family structures (first-marriage families, stepfamily households, single-parent households). In particular, mothers’ perceptions of children’s health, adherence to prescribed treatments, and help received from others were compared and predictors of treatment adherence were examined. Children’s health and adherence to treatment regimens were not related to family structure. Mothers had the major responsibility for seeing that cystic fibrosis treatments were followed, regardless of family structure. Single mothers received less help than married and repartnered mothers. Married fathers helped with treatments more than nonresidential divorced fathers and stepfathers. Implications for nursing practice and suggestions for future research are offered.

Key Words: cystic fibrosis • family structure • mothers • caregiving • single parents • stepfamilies


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