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Protective Care: Mothering a Child Dependent on Parenteral NutritionCalifornia State University, Los Angeles The purpose of the study was to examine the process of mothering a child who is dependent on parenteral nutrition (PN). Nineteen mothers of children who were currently or had been recently dependent on PN were interviewed to determine the practice and interpretation of their mothering role. Recorded tapes were transcribed and analyzed using grounded theory methodology. The resulting theory of protective care is composed of three phases: gaining control, taking control, and maintaining control. The categories of committing to care, watching over, challenging the system, promoting normalcy, putting life into perspective, and celebrating the positive, characterize the antecedents, strategies, and consequences of protective care. This grounded theory will enable nursing professionals to anticipate and address the needs of mothers of children dependent on PN who are being cared for at home.
Key Words: technology-dependent children chronically ill children parenteral nutrition mothering
Journal of Family Nursing, Vol. 10, No. 1,
93-120 (2004) |
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